American Heart Journal
Volume 150, Issue 2 , Pages 193-201 , August 2005

Biopsychosocial experiences of adults with congenital heart disease: Review of the literature

  • Adrienne H. Kovacs, PhD

      Affiliations

    • Department of Clinical and Health Psychology, University of Florida, Gainesville, Fla
  • ,
  • Samuel F. Sears, PhD

      Affiliations

    • Department of Clinical and Health Psychology, University of Florida, Gainesville, Fla
    • Corresponding Author InformationReprint requests: Samuel F. Sears, PhD, University of Florida, College of Public Health and Health Professions, Department of Clinical and Health Psychology, Box 100165 UF Health Science Center, Gainesville, FL 32610.
  • ,
  • Arwa S. Saidi, MB, BCh

      Affiliations

    • Division of Pediatric Cardiology, Department of Pediatrics, University of Florida, Gainesville, Fla

Received 6 March 2004 ,Accepted 24 August 2004.

References 

  1. Tayebjee MH, Lip GYH. Psychosocial functioning of adults with congenital heart disease: a neglected area. Eur Heart J. 2003;24:2159
  2. Perloff JK. Congenital heart disease in adults: a new cardiovascular subspecialty. Circulation. 1991;84:1881–1890
  3. Moodie DS. Adult congenital heart disease. Curr Opin Cardiol. 1994;9:137–142
  4. Care of the adult with congenital heart disease. Presented at the 32nd Bethesda Conference, Bethesda, Md, October 2-3, 2000, J Am Coll Cardiol. 2001;37:1161–1198
  5. Connelly MS, Webb GD, Somerville J, et al. Canadian consensus conference on adult congenital heart disease 1996. Can J Cardiol. 1998;14:395–452
  6. British Cardiac Society Working Party. Grown-up congenital heart. Heart. 2002;88:1–14
  7. Brickner ME, Hillis LD, Lange RA. Congenital heart disease in adults. First of two parts. N Engl J Med. 2000;342:256–263
  8. Brickner ME, Hillis LD, Lange RA. Congenital heart disease in adults. Second of two parts. N Engl J Med. 2000;342:334–342
  9. Wren C, Richmond S, Donaldson L. Temporal variability in birth prevalence of cardiovascular malformations. Heart. 2000;83:414–419
  10. Gatzoulis MA, Elliott JT, Guru V, et al. Right and left ventricular systolic function late after repair of tetralogy of Fallot. Am J Cardiol. 2000;86:1352–1357
  11. Graham TP, Bernard YD, Mellen BG, et al. Long-term outcome in congenitally corrected transposition of the great arteries: a multiinstitutional study. J Am Coll Cardiol. 2000;36:255–261
  12. Utens EMWJ, Verhulst FC, Erdman RAM, et al. Psychosocial functioning of young adults after surgical correction for congenital heart disease in childhood: a follow up study. J Psychosom Res. 1994;38:745–758
  13. Van Rijen EHM, Utens EMWJ, Roos-Hesselink JW, et al. Psychosocial functioning of the adult with congenital heart disease: a 20-33 years follow up. Eur Heart J. 2003;24:673–683
  14. Utens EMWJ, Versluis-Den Bieman HJ, Verhulst FC, et al. Psychopathology in young adults with congenital heart disease: follow up results. Eur Heart J. 1998;19:647–651
  15. Cox D, Lewis G, Stuart G, et al. A cross-sectional study of the prevalence of psychopathology in adults with congenital heart disease. J Psychosom Res. 2002;52:65–68
  16. Popelova J, Slavik Z, Skovranek J. Are cyanosed adults with congenital cardiac malformations depressed?. Cardiol Young. 2001;11:379–384
  17. Brandhagen DJ, Feldt RH, Williams DE. Long-term psychologic implications of congenital heart disease: a 25-year follow-up. Mayo Clin Proc. 1991;66:474–479
  18. Horner T, Lieberthson R, Jellinek MS. Psychosocial profile of adults with complex congenital heart disease. Mayo Clin Proc. 2000;75:31–36
  19. Bromberg JI, Beasley PJ, D'Angelo EJ, et al. Depression and anxiety in adults with congenital heart disease: a pilot study. Heart Lung. 2003;32:105–110
  20. Eiser C, Hill JJ, Vance YH. Examining the psychological consequences of surviving childhood cancer: systematic review as a research method in pediatric psychology. J Pediatr Psychol. 2000;25:449–460
  21. Starfield B. Primary care and health. A cross-national comparison. JAMA. 1991;266:2268–2271
  22. Jackson JL. The Dutch health care system: lessons for reform in the United States. South Med J. 1996;89:567–572
  23. Perrin JM. Universality, inclusion, and continuity: implications for pediatrics. Pediatrics. 1999;103:859–863
  24. Griffin KJ, Elkin TD, Smith CJ. Academic outcomes in children with congenital heart disease. Clin Pediatr. 2003;42:409–410
  25. American Psychiatric Association. diagnostic and statistical manual of mental disorders. 4th ed.. Washington (DC): American Psychiatric Association; 1994;
  26. Masi G, Brovedani P. Adolescents with congenital heart disease: psychopathological implications. Adolescence. 1999;34:185–191
  27. Gantt LT. Growing up heartsick: the experiences of young women with congenital heart disease. Health Care Women Int. 1992;13:241–248
  28. Alpern D, Uzark K, Dick M. Psychosocial responses of children to cardiac pacemakers. J Pediatr. 1989;114:494–501
  29. Anderson C, Horder K, Kristensen L, et al. Psychosocial aspects and mental health in children after permanent pacemaker implantation. Acta Cardiol. 1994;49:405–418
  30. Kokkonen J, Paavilainen T. Social adaptation of young adults with congenital heart disease. Int J Cardiol. 1992;36:23–29
  31. Fox A. Physicians as barriers to successful transitional care. Int J Adolesc Med Health. 2002;14:3–7
  32. Kools S, Tong EM, Hughes R, et al. Hospital experiences of young adults with congenital heart disease: divergence in expectations and dissonance in care. Am J Crit Care. 2002;11:115–127
  33. Tong E, Sparacino PSA. Special management issues for adolescents and young adults with congenital heart disease. Pediatr Neonatal Cardiol. 1994;6:199–214
  34. Tong EM, Sparacino PSA, Messias DKH, et al. Growing up with congenital heart disease: the dilemmas of adolescents and young adults. Cardiol Young. 1998;8:303–309
  35. Kamphuis M, Vogels T, Ottenkamp J, et al. Employment in adults with congenital heart disease. Arch Pediatr Adolesc Med. 2002;156:1143–1148
  36. Fekkes M, Kamphuis RP, Ottenkamp J, et al. Health-related quality of life in young adults with minor congenital heart disease. Psychol Health. 2001;16:239–250
  37. Muhll Vonder I, Cumming G, Gatzoulis MA. Risky business: insuring adults with congenital heart disease. Eur Heart J. 2003;24:1595–1600
  38. Swenson JR, Clinch JJ. Assessment of quality of life in patients with cardiac disease: the role of psychosomatic medicine. J Psychosom Res. 2000;48:405–415
  39. Saliba Z, Butera G, Bonnet D, et al. Quality of life and perceived health status in surviving adults with univentricular heart. Heart. 2001;86:69–73
  40. Gersony WM, Hayes CJ, Driscoll DJ, et al. Second natural history study if congenital heart defects. Quality of life of patients with aortic stenosis, pulmonary stenosis or ventricular septal defect. Circulation. 1993;87:I52–I65
  41. Kamphuis J, Ottenkamp HW, Vliegen HW, et al. Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease. Heart. 2002;87:356–362
  42. Lane DA, Lip GYH, Millane TA. Quality of life in adults with congenital heart disease. Heart. 2002;88:71–75
  43. Simko LC, McGinnis KA. Quality of life experienced by adults with congenital heart disease. AACN Clin Issues. 2003;14:42–53
  44. Rietveld S, Mulder BJM, van Beest I, et al. Negative thoughts in adults with congenital heart disease. Int J Cardiol. 2002;86:19–26
  45. Ternestedt BM, Wall K, Oddsson H, et al. Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect. Pediatr Cardiol. 2001;22:128–132
  46. Celermajer DS, Deanfield JE. Adults with congenital heart disease: a comprehensive specialist service is needed. BMJ. 1991;303:1412–1413
  47. Somerville J. The woman with congenital heart disease. Eur Heart J. 1998;19:1766–1775
  48. Saidi AS, Bezold LI, Altman CA, et al. Outcome of pregnancy following intervention for coarctation of the aorta. Am J Cardiol. 1998;15:786–788
  49. Whittemore R, Hobbins JC, Engle MA. Pregnancy and its outcome with and without surgical treatment of congenital heart disease. Am J Cardiol. 1982;50:641–651
  50. North TC, McCullagh P, Tran ZV. Effect of exercise on depression. Exerc Sport Sci Rev. 1990;18:379–415
  51. Swan L, Hillis WS. Exercise prescription in adults with congenital heart disease: a long way to go. Heart. 2000;83:685–687
  52. Therrien J, Fredriksen P, Walker M, et al. A pilot study of exercise training in adult patients with repaired tetralogy of Fallot. Can J Cardiol. 2003;19:685–689
  53. Lip GYH, Lane DA, Millane TA, et al. Psychological interventions for depression in adolescent and adult congenital heart disease. Cochrane Database of Systematic Reviews. 2004;3:[Systematic Review] Cochrane Heart Group

PII: S0002-8703(04)00537-X

doi: 10.1016/j.ahj.2004.08.025

American Heart Journal
Volume 150, Issue 2 , Pages 193-201 , August 2005